A Good Friend's Family Needs Help
Baby Autumn's Fight... please help
Medical:
Kensie Sheehan is organizing this fundraiser.
Andrew and I have remained rather private regarding our daughter Autumns health issues so far. Yesterday we finally got to speak with neurology and the genetics department. Not the news we had hoped for. The seizures Autumn is having are called infantile spasms (IS for short). They’re small movements with devastating effects on the brain. Yesterday we learned these IS effect vision, the way the brain processes what the eyes are seeing. Unfortunately Autumn is no longer tracing things with her eyes, so we’re unsure what she’s seeing or if she is seeing at all. This unfortunately can’t be reversed with surgery or anything like that. Once the damage is done, it’s done. The doctor was also very honest and said he believes Autumn will have some type of delay, the extent of which we do not know yet. Her seizures are getting better but they’re not gone so we’ll be starting another medication which is an injection in her thigh. We’re hoping to start seeing improvements in Autumn soon. These IS are so devastating because of the regression they cause. Autumn no longer smiles or laughs, she doesn’t play with toys or reach for things, but we’re hoping with early intervention we can get her some help with catching up. As for the genetics they did find something wrong, completely unrelated to Autumns seizures and it won’t effect her life at all. Which is really the only good news we’ve gotten this far. We keep praying for our baby, and we ask you do too. She’s a fighter, the strongest little girl I know. And no matter what mommy and daddy will always love you Autumn ❤️
The only reason I post this is because we have so many people reaching out asking and it’s just easier to get it out all at once to keep family and friends updated. If you would like to reach out feel free, times are tough right now so we need all the support from our tribe we can get! We appreciate all of the support and love we have received during this difficult time. We have a very long road ahead of us with many doctors appointments and testing but we can do this, we will do this, and we will get by ❤️
DONATE HERE > AUTUMN’S FIGHT
Here at FEN, Our prayers are with this family and this little one Autumn.
K. L. Cobb, Jr. Owner - Founder & Chief